Case Studies Library

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Case Studies Library

Do you have a story to share? We want to hear from you. Share a story from your UCEDD, LEND, or organization that highlights a success or activity related to inclusion and diversity. For more information, click on the "SUBMIT Your Story" button at the top of the page.

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LEND Fellows Past and Present Lead Multicultural Autism Action Network

Maren Christenson Hofer joined the MNLEND Fellowship cohort this 2018-2019 year. As the parent of an autistic child, she is keenly aware of challenges faced by families trying to navigate educational, medical, therapeutic, and other support and service systems to ensure that their autistic children's needs are met. Maren currently serves as a leader in the Multicultural Autism Action Network (MAAN), a non-profit organization built on the idea that navigating autism support and service systems can be incredibly complex for families, and even more overwhelming when differences in culture, language, and power dynamics are at play.

Maximizing Leadership Potential in Racial and Ethnic Minority LEND Trainees

The LEND programs of the PacWest region have worked together and consistently sought ways to strengthen interdisciplinary leadership training and achieve a diverse MCH workforce over the past four years. We began the process by identifying barriers and gaps in supporting and mentoring racially and ethnically diverse LEND trainees.

Ed Esbeck - Self-Advocate LEND Trainee

For Edward Esbeck, a 20-year-old native of Uganda who moved to Iowa City, IA, with his family in 2014, leadership is about helping others overcome challenges to accomplish their goals and dreams. Edward is putting this philosophy into action as the first self-advocacy discipline trainee in the history of the Iowa LEND program – an experience traditionally designed for graduate students in health disciplines that involves 300+ hours of interactive seminars, clinical and community experiences, research, and policy projects, and self-reflection over the course of an academic year. As a trainee, Edward is learning about systems of care for people with disabilities, the experiences of family members, and how to grow and thrive in a professional setting.

MN UCEDD Partners with MN DHS to Produce Multi-Cultural Films on Autism

The Institute on Community Integration (ICI) at the University of Minnesota (MN UCEDD), in partnership with the Minnesota Department of Human Services (DHS), has produced, "On the Autism Spectrum: Families Find Help and Hope," a series of five short films that raise awareness and understanding of Autism Spectrum Disorder (ASD) and of services available to Minnesota families within the African American, Hmong, Latino, Native American, and Somali communities.

Dreamer Dreaming Up Change for the Healthcare System (OR UCEDD)

This summer I had the opportunity to be an intern for the University Center for Excellence in Developmental Disabilities (UCEDD) within the Institute on Development and Disability (IDD) at Oregon Health and Sciences University (OHSU). My role was with IDD's Diversity Task Force (IDTF) that is made up of providers, clinicians, faculty members, staff, and family members. The mission of the IDTF is as follows: As compassionate leaders in healthcare, we strive to provide innovative and comprehensive services in a welcoming environment. The diversity of life is valued here, and we are committed to making inclusion a priority so everyone at IDD feels comfortable, valued, and respected. 

QUILTBAG2: Queer Inclusion as Diversity

The Alaska UCEDD, at the Center for Human Development, University of Alaska Anchorage, is working to nurture relationships with intersectionally diverse community partners, and research/evaluation stakeholders. A major project in 2015 involved conducting research and evaluation for a large community collaborative. It brought together three main community organizations, and involved training members from at least half a dozen others.

From the Desk of a Bilingual, Multicultural Advocate, Cultural Broker, Interpreter and Translator

In April of 2014, within a year living in Georgia, Brenda Liz (Bren) Muñoz met Stacey Ramirez, former Director for Individual and Family Support Services at the Center for Leadership in Disability (CLD), School of Public Health at Georgia, and currently the new State Director for The ARC of Georgia. It was a powerful kindred connection, and two weeks later they were working on a medical textbook chapter on cultural and linguistic competence and life span services, opportunities and supports for individuals, families and communities living with intellectual and developmental disabilities edited by renowned author and developmental pediatrician Dr. Leslie Rubin and et al.

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